View From My House

View From My House
Sunset
Showing posts with label health issues. Show all posts
Showing posts with label health issues. Show all posts

Friday, November 19, 2010

An Explanation and an Apology.

Hey !

I am sorry I haven't been around, I keep kicking myself, but there are some pretty good reasons.

I will endeavour to change my wicked ways and keep up posting because I have enjoyed it in the past so much.

Several things have prevented me from posting. My familie's health and my own. Yeah, sorry excuse maybe, but true nonetheless. I myself have been recentlyish been diagnosed with Sjogren's Syndrome of the secondary variety, something I've lived with literally for years and never knew that it wasn't normal. It's lovely to have some relief from that... It's obviously secondary to my primary condition of Coeliac's Disease. See my other blog here. That alone would not have stopped me from communicating in the intricate web of eminds.

Labyrinth was recently diagnosed with two definitive problems: Universal Global Developmental Delay and Phonetic Processing Disorder. These do NOT complete the puzzle that is Labyrinth. She's had to take epilepsy tests twice now, and they are undertaking further genetic testing. If nothing shows then we'll be seeing her pediatrician late this month to see if she requires further testing, she does require further treatment, this is a known fact. The government now approve her for having a disability. This is going on while she is experiencing the pains of Thelarche, while she sometimes can seem still like a toddler. OK, this isn't Labyrinth's complete picture at all. She's off charts for her age with Bodily-Kinetic and Spatial (See Gardner's Theory of Multiple Intelligences), considering she's got a small weight problem (which is now changing as she matures and is getting a little slimmer), its a little odd. Add to the fact she is ever hungry, cannot be filled up, only gets what the other children eat, plus is quite fit, her body does not 'fit' with her current energy levels/eating levels.

I had to drop out of university this semester. This hit me like a bomb, I was aware of Labyrinth's symptoms, of course, but... I went from first stage depression (which I was only aware of for two weeks) to borderline third stage in under two weeks. I didn't even realise there were stages. I tried Cognitive Behaviour Therapy for those two weeks and was needing to be medicated very quickly before I completely lost it.

That's the tip of the ice burg. Dante looks to have major childhood depression (worrying early, so he might develop bipolar as a teen - poor darling). Kai has become incontinent in his bowels. Monika and Raven have thier dietry issues. Then there is Andrew, he's suffering very badly from headaches, literally constant since early this year. He's got them except when hes asleep it just varies to what degree. Of the tests completed his MRI came back negative, but somewhere along the line he has had his nose broken with swollen sinuses, and he has badly impacted wisdoms. These wisdoms aren't painful at all, unless they are causing the headaches. If it's NOT these reasons they need to begin looking at other reasons, like environmental. He's convinced its not his nose, and doubts its his teeth as it's extremely rare for just headaches. Its making him depressed.

I just want to move, the space is crushing my spirits, there isn't enough room to live here with 7 people, all wanting to pursue different avenues of interests. Argh... But the view is amazing. I need a sea change. We need a new car, preferably a Land Cruiser/Rover so we can have a trailer.

I am having a change of religion too. Positives for another post thought, coming soon!

Sunday, May 23, 2010

Mother's Day, my birthday and our homeschool month!







Above are a few of my gifts, these were what I recieved for Mother's Day. I'm Babushka Doll mad. When I was growing up we loved visting a certain older couple who used to fill me up on wonderful stories of their lives in old Europe before immigrating to Australia, and these Bubushka Dolls sat on her mantle, some from 'the old country', some Inga had collected over the years. They used to fascinate me, just as much as the stories they told. I remember Villy being very surprised when I told him the story he was 'reading' to me had different words than the printed ones! Yeah I was a nerd who could read before I set foot in school.
The teapot is such an awesome replacement for the second tea pot the darlings have smashed over the last few months. It's really nice Hello Kitty kind, the plastic seems sturdy though I'd prefer no plastic, and the glass mouldings and the strainer is just perfect. I mean that, it doesn't let any real residue through!
The stamp is a present I brought for myself, I've wanted a Raven stamp like forever and this happened to be going cheap on Ebay, so I thought I'd snap it up. I can certainly add it to Raven's scrap pages, I want more of them, can't ever have enough stamps I'm afraid. Ahhh, the Scrapper's Lament.
I did get some more scrapbook project boxes, a table I can set up in front of the telly to scrap on (hell, nothing expensive), a new tool tote and a scrapbook bag. I'm actually downsizing. I'll be putting four project boxes together and doing them on the couch (with new table) or at the kitchen table, and getting a tall boy for sensible storage for clothes as opposed to taking over my bedroom with scrap storage and desks....at least that's the theory. My mum brought me Cadbury Chocolate (plain which is Gluten Free) and a purple skirt. She gave Michelles children an Ocean candle to give me. She's getting better at guessing what I'll like as an adult. Andrew keeps ribbing me about the Independance Day Boardgame she gave me the year they met him (we were already married! That was a story I might deluge one day).
Andrew and I have struck a more structured homeschool, we do four lessons a day, and by god he's taking half of them! We evenly divided up the lessons, giving ourselves a day off a week, plus a weekend which for us in Friday/Saturday (we never school on Friday's anyway because it's pay day and we're oftten busy). Sundays are English creative writing, Blogging (for the children and me - find them in the About Me link), Maths and Japanese. Mondays are Art apreciation, German and double science. Tuesday is English Grammar, Craft or Cooking, Maths and IT (they're building web pages atm), Wednesday is Music, Craft or Cooking, and our playdate with other homeschoolers, this would also be the time for trips to museums and art galleries etc, and Thursdays are English, Reading aloud, Maths, Watching language shows like Muzzy or Japanese Anime. The lessons are done in a fashion that we either take all morning or all afternoon which has left me time to pursue my dream of losing weight, getting fit and doing my university work in the daytime! This was all good in theory till I pushed myself too hard and pulled a muscle in my lower back, and I was doing so well! I might have taken nearly 5 months but I've lost a dress size.
Tuesday's lessons haven't happened yet, it turned into a playdate with their cousins from Perth, my sister Michelle who is now a doctor brought the beautiful bright cousins over to play! Ella also visited on Thursday and we ate tea at my Mum's where they were staying. Michelle was attending a Women's Health Conference (she was doing it for some kind of credit? on her medical knowledge somehow). So this week with me injuring my back on my birthday and Michelle and her children, I've been flat out busy (as has the rest of the family). We've not been able to go to a homeschool playdate since last week, but it's only one week and they got to spend a day with the cousins who they really get along well with.
There are fewer knots and bruising on my back today, but yesterday was painful! I brought some Solopas from the Chinese Emporium which help amazingly, Andrew slathered my back with Arnica and Comfrey mix (which was for my broken arm long time since). I had a long bath with a little Monika intruding for a bath at the end - hey she can have a bath now and she doesn't suffer from eczma anymore.
Finally, we spent four and one half hours with a the very Dr Donahue at the hospital on Friday, which is all about finding the results to the children's various illnesses, all of which I will blog on my other blog Quasior's Recovery From Silly Yaks. He accepts I am a celiac, and Raven is too! After all this time it's nice to have a doctor agree with me. I will be joining the Tassie branch of Coeliac Australia soon.
That's about all for now in our little corner of the world. I'm sorry I've been absent so much, I've just been crazy busy, Q. I will add in photos of more scrapping soon.

Saturday, March 13, 2010

The Annual Home Education Picnic and A New Addition To Our Family!

Above is the new addition to our family, as yet unnamed The Cat is asleep with Monika. He's a pretty lad, isn't he? We did it the responsible, and ultimately the less expensive in the end way. He's had his vaccinations, vet checks, a voucher for desexing, and microchip all for $130. He has blended into our family rather nicely. He's got a very sweet nature, and of course lots of kitten energy when he's not asleep! We brought him from the Cat Centre having decided very early on we didn't want to buy kittens from pet stores, who are pretty irresponsible when it comes to cat/dogs.
OK these are the only photos we have of our picnic at Ross with the other registrared home edders from around the state. Really shouldn't have went along, but I didn't want to disappoint the children, they still had a good time, I made muffins the day before. I was unwell that day and hid most of the time in the car.


Last night was the first night I had with the Sleep Apnea machine... and wow what a difference one night makes !! I got about twice as much as I usually get done, I didn't have to wait the obligatory 4 or so hours to wake up properly. Really. I have a nickname "Zombie". So a four hour time slot where I was already fairly awake makes a huge difference! The experience was slightly uncomfortable for a while, and about twice the pressure was literally painful, but it's an easy thing to just turn it off and back on again and it resets itself. Its the machine that reads my responses so they know what settings it needs when I get my own machine later on next week. I think it is going to be great, as I felt like my lungs hadn't opened up that much since probably before Raven was born and I got asthma - so it might do even more things for me. They told me I was moderate to severe, having 31 small sleep apnea's an hour, thats about every two minutes! I think I've got a bit of work to do, but I'm going to be healthy soon! I feel like I might be a real human at some point this year, won't that be different? Anyways, things are looking great here at the moment, until next time, Q.

Tuesday, October 6, 2009

There be dragons in these here parts...and Elmer too.

Above Monika is enjoying Elmer in the Snow with Mummy - pure joy.
These are the pictures of dragons the children drew today. To help them have a really good go at it (instead of just slacking off about it) I was naughty and made it into a bit of a competition. Basically what I wanted from them was to push themselves just a little bit, and these were the results. Andrew and I decided that Kai above won the little competition. I was going to give him and all the runners up (ie the rest of the children a chupa chub each) and the winner, Kai, to recieve a chupa chub and some time on the PS3. He shows his generous heart by sharing his time playing a multi player game with all the children. I was so pleased it worked out well and everybody was really happy, so I didn't get the guilts up about making it competitive - even though in this particular case the end did indeed justify the means - everyone ended up happy.
So next runner up was Raven, he did a good effort but in drawing but lost his edge when it came to putting time into colouring it, Labyrinth next, with her very colourful and creative nose diving dragon, and Dante who usually leads the way didn't seem to have his heart in it at all, unfortunately.

Motivating them has been challenging of late. They do their standard lessons mostly happily, they just don't like doing extras (which they view the myth lessons to be). We will be doing clay dragons on Thursday, with any luck the weather will be beautiful tomorrow and we'll be spending some of the day with fellow homeschoolers in a park.
Backtracking a bit, I thought I might add in Sunday. Sunday was fantastic, we went to the local fair in Blackman's Bay to be with some friends. It was a nice hot day too. We didn't really want to spend a heap of money on the one train ride or the jumping castle, it would have cost $15 for all the children to have a bounce for ten or so minutes. Not bleeding likely. But we did fill a bag with toys for $5 - building duplo blocks, a complete wooden Thomas the Tank Engine puzzle, and a soft toy each, a box of Yowie bugs cost $2 and a large stack of books for $4. Was very pleased. Then we spent some time with our lovely friends Jess and Jade, and their children Jaz and Theo. We had a great time chatting, and her mother and psuedo sis in law Charlotte was there too for a while with their son Noah - I haven't seen Charlotte in years, same with Jess' mum. Also tried out SingStar which is a positive for Christmas.
Still haven't decided on housing options yet. Can't seem to think how we could make this space work with seven, five of which are growing at a phenomenal rate. Raven is now Gluten Free, which I'll have to update the Quasior's Recovery From Silly Yaks soon to explain all that. That is all for now, Q.

Thursday, June 25, 2009

We're all sick with that cursed flu

So here's some photos, above, Raven in a Basket, below Monika with Labryinth's Red Panda.
Labyrinth and Monika together.
Dante and Kai together. Ironically I tried catching Raven and Monika in that basket together but she'd gotten herself out by the time I'd gotten that camera!
Besides the 'flu, there are other health concerns. One day at a time.... with luck next time the post will be full of wonderful things.
Oh, we did go to a homeschool community activity, which was paper craft, science (such as mobius strips) and paper making. Lots of fun, and lots of socialising!